Mason’s newborn photos

“Vision is the art of seeing what is invisible to others.” ~ John Swift

Today I met with Mary & Mason for the first time since they’ve been home from the NICU. Mason who was also born with spina bifida remained in the NICU for a little over a week and is doing remarkable thus far. Here he is just over two weeks old.

We were so excited to see his eyes open in the NICU that today he decided he wanted to sit and hang out wide awake for a bit. I of course took that as a sign that he wanted me to make sure I captured his adorable eyes. I hear everyone wants to see this little guy in color…so here he is…blondish brown hair and I believe those are blue eyes right now.

I suppose since having Chance nearly six months ago I am beginning to realize just how important it is to help give other mothers that “hope” I had hoped so much for when I was pregnant. When I was pregnant all I read were the medical journals and web sites and a few blogs of other families. It felt like I kept hearing all the most awful things that could happen…and little focus was placed on the pure beauty of these little ones who are truly miracles. I suppose now it’s time to push on with my vision…to help others somehow see what I struggled so hard to find that month after I found out Chance had spina bifida and for the remainder of the time I was pregnant with him. Just look at Mason’s sweet face…curled up just like the approximately 70 other newborns I’ve photographed…if I didn’t tell you…you’d never know he had spina bifida. Even with something that sounds so awful…yes, spina bifida…there’s something quite special in these little souls. Yes, Mason…you are precious and I sure loved how sweet you were to me today.


Due to his spina bifida, Mason was born with two club feet where his feet turn inward. Once his back is completely healed they’ll put casts on his little feet to help correct the problem, but for now they remain curled up. It was quite breathtaking today to photograph his feet. I knew they’d be something special before I took the photos…but looking back now…I’m fairly certain these are some of my absolute favorite newborn feet photos ever. I suppose the only thing more uplifting than these photos was hearing Mary tell me Mason began moving his legs yesterday…and I got to see it today for myself. Yes, it’s a miracle…and we’ll all keep praying that these feet will someday take steps all on their own. For now hopefully you will also enjoy my admiration of his little feet.:)

Mason was still somewhat curly…but not quite the same as other newborns. I worked with positioning him today. He definitely preferred to stay wrapped. Instead of curling his legs inward, he curled them upward and kept his legs pretty straight. His little feet peek through his wrap so preciously here.

I’d love to take all the credit for taking such sweet photos of Mason but it definitely wouldn’t have been possible with out Mary helping so much. As I worked to position him she often would sing a sweet lullaby in spanish to him….it was absolutely beautiful…the sort of stuff you never forget. It definitely did the trick to help soothe her little man to sleep.

Many prayers to our new friend Mason…we’ll continue praying for his back to heal quickly and that he escapes the need for a shunt.

Here I am.

What a week it’s been. This time last week I was getting ready for surgery thinking it wouldn’t be that big of a deal…here I am a week later. It’s been a much tougher week than I imagined it would have been.

I’m finally getting a little caught up with things…like photos. I posted photos from the past week from when Jason’s aunt Terri visited in flickr finally. It was a huge help having her here and looking back at the moments I felt up to taking photos certainly left with a few memorable moments that I know we’ll cherish years from now. I also added photos from the last few weeks…you know life has been crazy when I’m not keeping flickr updated! *sigh*

Though I haven’t been completely silent this past week, I have had so many of you contacting us asking how we’re doing that I thought it was time to finally share an update. I suppose if I look back at my photos in instagram snapshots this past week…it totally sums up my crazy week.

Here I am on break from Valencia and totally working on my “to do list” while recovering after surgery. I suppose that’s not the best thing to do while on medication and in pain…I’m praying I’m past this “recovery” mess soon because the fall is expected to be quite busy for me. I’m sure I’ll have that silly little mindmap finished soon to share it for those of you who enjoy my crazy mindmaps.

I truly hate taking medicine. I came home from surgery last week feeling a little dizzy just looking at the medicine Jason picked up from the pharmacy. After the first dose or two I realized I was never going to be able to keep up with it all without making a chart of times. Antibiotics + pain medicine. I pray the antibiotics are working better than the pain medicine. With all they had to do during the laparoscopy it’s left me in far more pain than I anticipated. I was told it is to be expected. It’s not quite as bad as it was the first day or two home but the last day or two the stinging abdominal pain is pretty persistent, even with pain medicine. Usually when I first get up in the mornings or in the middle of the night it’s more like a sharp stabbing pain…not fun at all. I know my body is still healing…right now I definitely still feel worse than I did before the surgery. *sigh*

Before surgery I didn’t think the topic of “milk” would become an issue. For close to the last six months I’ve been nursing + pumping to feed Chance. I’ve never had an issue with any of my children, however, in the last week I’ve noticed the milk supply plummet…at one point for a day or two down to nothing more than mere drops. Yes, I’m fairly certain a day or two I shed more tears than milk. It has nothing to do with the medication but more than likely a part of my body trying to rebound from going through surgery. My doctor and the lactation consultant have advised things like continuing to nurse, pumping more, eating oatmeal and trying the mother’s milk tea to help produce more. It’s been tough…honestly it’s almost like I’ve had to start over. Thankfully it’s slowly starting to get better…I think. It definitely has only made the past week a tad bit more stressful for me.

I suppose I should credit our lab supervisor at Valencia for cheering me up most this week with a new macbook pro laptop. For those of you who may not have heard, at the end of May my laptop crashed. I suppose I’m the one guilty of working an apple laptop to it’s death…something many consider impossible to do. My workflow has been disrupted all summer as I’ve found ways to somehow keep up with my busy schedule despite the computer issues. It doesn’t matter how bad the past week has been…an apple sure is one way to make me smile.:)

And really, the real thing keeping me smiling this week are the kids. You know I’m not feeling well when I haven’t been taking many photos…well, today I decided to take a few photos late this afternoon as I noticed Chance being adorable. He’s gotten into this baby talking thing lately where he makes the cutest coos over and over. I swear he’s the most social of the three kids thus far at his age. Here’s my baby boy who has had to put up with his Momma not feeling too well, barely producing enough milk for him, and not being able to tote him around as often or out and about as I normally do….and he’s just oblivious to it all and happy as can be. I think he just knows I need more reasons to smile. It was a dreary day out…so I was thankful to have high ISO to crank up on my camera, otherwise I would have never been able to take these photos. Yes, a silly photo opportunity today after noticing him coo’ing up a storm on my wrinkly bed.:)

They say you can see into a person’s soul through their eyes…I think we all can sense just how much this little guy will have to say to us all someday. He’s been through so much and still continues to amaze us.

The only thing missing today was Daddy who had to work. Today Jason made a comment about how every time he enters the room Chance smiles really big…sort of like the sign that he loves his daddy. I decided to take a photo of him sitting for the first time in a while. This little guy continues to amaze me. He sat on his own for a minute or two…with no help at all…and even let out a big smile…just like his Daddy was in the room with us.

While I was taking photos of Chance the kids were finishing up in the bath…I absolutely love to take photos of the kids when their hair is wet…for some reason it makes for some cute portraits….sometimes…like when they’re cooperative.:)Well, the whole time I was taking photos of Chance all I could think of was how awesome these two big kids of mine were and how I missed the days when I was able to just take their photos. It seems like Chance has stolen the attention when it comes to taking photos…something common in the first year with all my kiddos. Well, I asked them if I could take a few photos and thankfully they agreed. I love Jaylen’s little smirk lately…this is the expression he gives me when I ask him to smile.:)

Though I equally love his innocent look.

He begged to put his shirt on…and that’s when the really cute smiles happened.:)

Hope’s at that age where she’s usually pretty cooperative…but usually I get the “will you please hurry up and take my picture” look. I decided to take a series of half face shots…she’s still asking me why I only took a photo of half her face…but I love them…even more so because she acted a little silly and I managed to get her silly side.

Thankfully Hope & Jaylen were okay with me taking a few more photos of just them. I think back to 2009 and when I tortured them so much with the photo a day goal…and how much life has changed since then. I sure miss those days sometimes…I suppose taking their photos brought that deja vu moment of taking their photos so much back then and the days of when it was just the two of them. I sure love seeing how much they’ve grown to being such an awesome brother and sister…their love for one another sure leaves me speechless some days, like today.

I have yet to get this little “ear” trick on video…but I’m proud to have a little snapshot of it on camera. Jaylen still loves this ear trick his Aunt Allison taught him when she visited after Chance was born. Yes, you get the picture….he pulls his ear and his tongue moves…of course it happened when I was trying to get them both to cooperate for a photo of them both. I sure love the spontaneous silly moments.

I’VE BEEN “MOMINATED”
So I got this email earlier today from one of the editors of the Babble web site. Thanks to one of my awesome students I was “mominated”as being one of the mothers leaving a positive impact on others. Here’s a part of the message I received from Babble today.

“You have been “Mominated!” As part of Babble’s Mominations–a celebration of 100 mothers who are changing the world for the better–we’re looking to reward moms who’ve changed the way we view motherhood, whether that’s through activism, education, politics, science, or any other area that makes the world a little better. As a Mominee, you’ll have a chance at one of ten $5,000 prizes to the cause or charity of your choice.”

Seems simple enough, right!? I suppose it’s time to see just how much of an impact I’ve made…perhaps you all can help me. As “cool” as it sounds to be “mominated” for this distinction of being a mother who’s making a difference…really I’d love the opportunity to help the charitable causes I am so involved with. Instantly I thought of the Spina bifida association and Now I lay me down to sleep and how much of my help I know they need. At any rate, if you’re willing to take a moment to help me all it takes is you going to the Babble web site to the page for my “momination” and clicking “like”, retweeting, etc. – I believe the person per category with the most votes by the first week or so in September will be awarded the prize to give to the charitable causes of their choosing.

Thanks again to everyone for continually sending such uplifting thoughts as our family has been challenged so much this year. As rough as things have been it sure helps seeing the out pour of support again.

Update after surgery

“Things pass, and the best we can do is to let them really go away.” ~Paul Coelho

I’ve made it past another surgery. Yesterday was a bit of a blur and I definitely wasnt in any shape to be updating anyone by phone, email or my blog…so my apologies to those of you waiting for an update…hopefully this will help. It always seem to help me a bit.

We all prayed this surgery would help the doctors discover what was causing the pain these last few months.. My doctors have been amazing to me again. We all tried to avoid surgery because we know I am good at being complicated when it comes to medical procedures…but after knowing what we know now it was inevitable. I’m glad we didn’t wait because I am not sure how much more pain I would have experienced.  As I mentioned all the pain and discomfort I had been having for months we tried and prayed that waiting out the pain and hoping the pocket of fluid showing in ultrasounds and an MRI would go away on it’s own. In the last few weeks I began feeling a lot more pain. The best I could describe it as feeling like someone was poking my stomach with needles or something sharp stabbing me in the from time to time. This pain left me feeing miserable somedays – I have a pretty high tolerance for pain so as my drill sergeants in the military said I learned to “suck it up and drive on”.

After the most recent experiences with pain we agreed for me to undergo a laparoscopy that gave the doctors a better view than what the ultrasound and MRI were showing. As nervous as going through another surgery we all know it was for the best. For the last few months I knew something wasn’t right…call it intuition if you’d like. I partly have had moments the last few months feeling like maybe all this pain was in my mind because it wasn’t going away and I wasn’t feeling any better. Once again I find myself in a position that my doctors haven’t seen anything like it. I’ve come to deem myself to be their most complicated patient once again falling in that .001%. I recall at my post partum visit one of my doctors said pain could be caused from scar tissue and if so they’d do a laparoscopy to fix the problem and that it was very rare that it’d happen. I recall shaking my head back then…we all know I win those lotteries that aren’t so great. Once again I won the not so great medical lottery.

Yesterday’s surgery took longer than expected – I was told about 2 hours. They found a lot of extra scar tissue which had to be removed. As they did they found what we were referring to as a pocket of fluid. The fluid was apparently a pretty decent size infection trapped near some scare tissue. They also removed that. The doctors were a bit surprised that I lasted this long coping with the pain caused from these issues.

We were told by everyone the day prior to surgery that it should go quick and we’d be home by around 1:30 if all went well. We didn’t leave till after seven. During recovery I had a lot of pain so they monitored me longer than the norm. I’m still recovering and coping with a lot of pain. Even with pain medicine my stomach hurts so bad. Hopefully in the coming days it’ll subside and I’ll gradually be able to get back to things.

My apologies again to those we haven’t contacted directly…with as many medical problems that have been thrown at our family the last 2 years it is still easier for me to update you all through my blog rather than calling or emailing everyone individually. Once again thank you all again for all the prayers…it’s uplifting to see just how many people truly care for me and my family.

Surprise.

“Hope quietly abides in our souls and whispers comfort on our journeys when we need it most.” ~Unknown

Tomorrow morning I go into surgery to undergo a laparoscopy. Yes, surgery…again. The topic is something I’ve preferred not to speak much about but after dealing with months of pain since the c-section when I had Chance it seems to be the best way to know what is going on and hopefully help correct whatever the cause of the pain is. I haven’t been feeling the best physically the last few months and have underwent a couple ultrasounds and an MRI which raised a little concern but in recent weeks the pain has at times gotten worse which is quite concerning for me. I don’t think it’s necessary to go into much detail, I’ve tried to share the news with the few I felt up to telling and I know surprises or news like this rarely remain secret for long. I’m a tad bit nervous, even though I’ve been told it’s a minimally invasive procedure…I thought the same about a D&C back in 2009 so needless to say I won’t breathe a sigh of relief until I wake up after surgery and my doctor tells me I’m okay. I have the best doctors in the world…so I know I’ll be well taken care of.

Once we confirmed the date of surgery we coordinated with Jason’s aunt Terri to fly down to spend the week with us. We’ve relied on so many family and friends to help with the kids this past year and though I know they’d all offer to help again…I admit we’ve been missing Terri who is like a mother to Jason and his brothers. Her original flight yesterday was delayed so we rushed to the airport this afternoon and waited for her flight to arrive. Jaylen was so stinkin’ cute. It’s been about two years since he last saw her and I don’t think he quite remembered her from her last visit.

Hope, however, has talked non-stop about her since we mentioned she’d be flying down. She nearly came to visit around when Chance was born but wasn’t able to and I recall how Hope talked about her nearly every day back then wishing for her to visit. As much as I wished she could have visited then I suppose it all makes sense now why God decided to prolong her visit to see us…Lord knows how grateful we are to have her help this week.

This was a brief moment after we arrived home during Terri’s first moment holding Chance. It should come as no surprise that he loves her already. I admit that the moment the reality hit me that I was going to go through surgery again I woke up and realized that it would be the first time I’d leave Chance for longer than an hour or so with anyone besides Jason. Instantly I thought of Terri and called her praying she could come visit. As I head out to surgery I admit I feel a little more reassured knowing she’ll be with my baby boy.

The decision for Terri to visit came with very little notice so we decided to try to keep it a surprise from the rest of Jason’s family in Orlando. The only person we managed to surprise was Jason’s grandmother. We had to coordinate with the others in order for them to free their schedules and it all ended up working out perfectly. Surprising Jason’s grandmother truly lifted my spirits and helped distract my mind from the nervousness I’ve been feeling about surgery. We all met for dinner and a moment after arriving Terri walked in asking if she could join us. Though Hope & I both had cameras pointed at her she had absolutely no clue. I suppose that’s one perk to being a little OCD with photography…thankfully it allowed us to capture a few photos and a video of the memorable moment.

Seeing her reaction was irreplaceable. Though I know Terri is here to help us…I just know that Terri visiting is helping lift Grandma Bristow’s spirits.

Yes, Grandma Bristow is quite happy that we helped bring her baby girl to visit her. Words can’t quite explain how overjoyed she became the moment she realized Terri was here.

Hope was such an awesome helper. I asked her to take a video on my iphone of the moment.

Jason had to work but was able to stop by briefly to be there when we first surprised Grandma. He was so excited to see his niece Raven.

I adore my little man Jaylen who was as cute as could be. He was so stinkin’ cute and I asked if I could take his picture…he said yes.

He was even willing to take a photo with me…it made my night…even with his Uncle Erik making bunny ears behind us.

Chance was a little clingy…I think he knows how I’ve been feeling lately because he’s needed a lot more tlc from me lately. But for a few minutes he was happy to sit with Terri & Hope while I grabbed a bite to eat. Yes, I had to stop stuffing my face and take a photo.

A short time later he decided he’d sleep away his time at our dinner. I sure do love this sweet face.

The kids started running around and goofing off. I of course attempted to take a few photos…they ran away quickly. Nothing a little bribing with ice cream won’t fix, right…well, not quite. They cooperated…but totally a few real moments that make me smile. Yes, my kids are silly…one is trying to be a superhero while the other is dramatically pouting because I’m taking her photo.

Take a guess at who was being a troublemaker…:)

Okay, the whole bribing with ice cream trick didn’t work…I tried…but they are my kids and well, sometimes it’s these real moments are far more important to capture…this is exactly what it was like…and perfect or not…I still love it.

Terri got to spend some time with our niece Raven for the first time in about two years.

Before dinner ended I’m fairly certain Grandma Bristow was still in shock…and still so happy to have Terri here. She told me it was the best surprise.

Before we left Raven decided to show off her new walking skills. Since the last time we saw her she began taking a few steps on her own.

Before we left Jaylen was talking about Terri non-stop. Yes, my shy guy was saying her name all on her own without being asked. It was so evident that in the short time she’s been here he’s come to adore her. I recall when Jason and I first started dating I use to say that if I ever had kids I hoped to be half as great of a mother as Terri. Having her here this week means the world to us. There’s no doubt how much she loves our kids.

Thank you all in advance for your continued prayers.

A few more moments with Mason

“If I could give you one thought, it would be to lift someone up. Lift a stranger up–lift her up. I would ask you, mother and father, brother and sister, lovers, mother and daughter, father and son, lift someone. The very idea of lifting someone up will lift you, as well.” — Maya Angelou

Over the last few days I’ve been overcome by the out pour of love and support and sincere thoughts shared after sharing baby Mason’s first photos in the NICU I had taken. I’ve been in close touch with Mason’s mother and as you all might imagine…she’s quite busy with trips to the NICU to visit her baby boy and hasn’t had an opportunity to share too many updates. She’s been released from the hospital and is staying fairly close so that she can visit her baby boy often. Her two older children are visiting now so I offered to visit them again in the NICU to capture a few more moments now that Mason is just one day shy of being a week old. I arrived and he was sleeping peacefully…yes, aside from the wires that monitor his vital signs he’s wirefree.

As the nurse changed his diaper his big sister helped keep him content.

Since my last visit a few days ago Mary has been permitted to hold her baby boy…yes, a moment that clearly brings them both so much happiness.

There was no denying the “real” moment of my time with Mary and her kids. Her son had a blast acting silly when my camera was pointed towards him.

Mason is now feeding by bottle and doing quite well since coming off of his feeding tube.

This little guy clung to his Momma’s finger.

…and would not let go.

He opened his eyes for brief periods of time for us.

But spent most of his time resting…like the sweet newborn baby boy that he is.

I’ve photographed a few spina bifida babies since Chance was born…and I swear they have got to be the happiest and most sweet spirited little souls I’ve photographed. Mason let out a huge smile. I’ll be counting the days now until I get to take his “official” newborn photos and pray he remains this smiley.

Mary’s son joined me in taking photos before I left. We had so much fun I thought we were both nearly about to get kicked out of the NICU. Thankfully the sweet nurses were willing to put up with our laughter and attempts to get the best photos of Mary and Mason.

I’m afraid to see the photos her son took of me…but thankfully he cooperated with me while we both took some fun photos.

Mason’s back continues to heal. The doctors have checked on him regularly and continue to monitor him to ensure he doesn’t develop hydrocephalus. Thus far he shows no signs of needing a shunt. Mary’s family has their fingers crossed that he’ll continue to heal and possibly be out within the next week. Spina bifida can be pretty unpredictable but the prayers are working…and I suppose for now that’s the most we can all keep doing.

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