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There’s a movie Hope watched recently where a girl turns 16, makes a wish list of things she hopes to happen when she turns 16 and as happens in the movies…her wishes come true. Hope thought it’d be wise for her to do the same before she turns 10. With her 10th birthday less than […]
by Amanda Kern
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“We’re so busy watching out for what’s just ahead of us that we don’t take time to enjoy where we are.” ~Calvin and Hobbes Ah, yes, leave it to running across the words of wisdom of Calvin and Hobbes recently to remind me to stop thinking about the many things keeping me busy and weighing […]
by Amanda Kern
2 comments
Chance is so darned cute!!! I love the wide awake eyes in these pictures 
And Amanda… if you are rocking the shunt you can TOTALLY rock the bowel issues. And the cool thing with those… as babies and small children they are HARD (no lying, I don’t do it!) BUT, when they get older, those issues become easier, and mostly you can elliminate the meds and go to timed routines. Ahhh, so nice!
You are doing GREAT and you gus deserve a big team hug! Chance is blessed to have you guys as his family!
I am so proud of you and your family. Thank you for sharing!
It’s been just over a week since Chance’s last surgery and he’s doing quite well. He’s had a few fussy moments but he continues to be one tough little dude with the most adorable personality shining through, despite how much he’s been through. Here he was just a couple days ago…adorable, right!? The kids were […]
by Amanda Kern
57 comments
Yes that pesky latex allergy.
I’m so sorry that Chance reacted to those bandaids! But look how grown up he is! Has it really been 4 months! Wow!
I have gone over and over those stupid lists!
Some of the things that I found that I watch out for are bandaids, balloons, gloves, nipples/pacifiers. The rest I keep in mind. But there are also elastics (on clothes) and latex prints on shirts.
Every time we are in the hospital I make sure everything is latex free, and for my c-section, I even made them do it as a latex free set up.
Yes it is everywhere! The bane of my existence is latex!
There is something about spina bifida that makes our kids more succeptible to this allergy. Because it still exists even with little to no exposure.
Good Luck!
He is ADORABLE!!! They all are. And love the shirt!
Latex SUCKS!!!! And it is everywhere 
But you will get the hang of it and it will just become life!
My biggest warnings to new latex alergy moms are: NEveR forget it is a progressive allergy, each time they are exposed the risk and reactions can get worse! Anything that sticks to the skin, check. Dang diaper can have latex so be careful there! And SMELL everything that you know has latex in it as you are learning. My son is now almost 11 (HOW did that happen?!) and I can wlak into a room now and smell if there is latex in it…. great sense to have when being protective momma bears to our gifts!
I can’t believe how big Chance is getting and how fast it seems to have gone! And I also have to say that you seem to be rolling with the punches really well! Everyone uses scare tactics on new diagnosed people, but really, everyone has a cross to bear, and at least SB kids are danged cute! and super brave kids
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I will immediately seize your rss as I can’t find your e-mail subscription link or newsletter service.
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“A man’s worth is no greater than his ambitions.” ~Marcus Aurelius This past Tuesday Chance had his fifth surgery to repair his umbilical hernia that he’s had for over two months. Though Jason and I sent some updates briefly through facebook the day of his surgery I know many of you are still waiting (and […]
by Amanda Kern
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You’re still awesome to me!!!
by Amanda Kern
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