Category Archives: Family

surgery number seven

“Everything in life is luck.” ~Donald Trump Luck. Something that seems to always work against me & my family. As luck might have it…I find myself posting another update from the hospital as my baby boy has went through yet another surgery. Surgery number seven. Seven is thought to be a lucky number…for everyone except […]

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July 31, 2011 - 12:11 pm

Betsy - Amanda – just wanted you to know I’m praying for your little boy & you.

July 31, 2011 - 3:50 pm

Lora - I can only imagine how heartbreaking this has been for you. Chance is very lucky to have you as him mom and a family that loves him more than anything. Please know that we continue to pray for you guys.

July 31, 2011 - 4:07 pm

Randi Williams - Our Patricia has had only one shunt malfunction in her first 15 months, so I don’t know what you are going through, but my thoughts are with you. It sounds like you have a lot of people around you for support, but if you need to get in touch with another mom of a child with Spina Bifida, I am here.
Randi

July 31, 2011 - 4:37 pm

Lisa - Whatever you need, let us know.

August 1, 2011 - 9:36 pm

Elizabeth - What state are ya’ll from? I have SB and hydrocephales. My prayers are going up for you and your family. Stay strong God always has a plan! Jeremiah 29:11.

The last 48 hours

“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths.” ~Elisabeth Kubler-Ross What a whirlwind this week has been. Typically this week is one of the busier weeks of the year for me as we’ve approached final […]

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July 31, 2011 - 1:29 pm

Heather - your LO is soooo adorable!…you are truley a strong woman! my daughter has Sb herself she is now 2years old and im so lucky that she has only needed but one surgery after her birth! KEEP FAITH and stay strong! ps i love all ur pix they really grab the moments

5 months.

“In the book of life, the answers aren’t in the back.” ~Charlie Brown The last two weeks have been pretty challenging but there isn’t much that stops me from moving. Perhaps this past Friday was a full moon or the days all the planets were aligned and everything was meant to be chaotic. Yes, everything. […]

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Thanks to spina bifida…

“What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others.” ~Percicles When I first learned Chance had spina bifida I recall thinking it was some awful curse. Like the worst thing in the world that could possibly happen to me and to my family. […]

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July 22, 2011 - 10:30 am

Colleen - Thanks, Amanda, for the sweet words, and the wonderful photos!

July 22, 2011 - 11:08 am

Cassie McLelland - So jealous! I would love to have been there, too bad I live in Texas. Beautiful photos by the way.

July 23, 2011 - 1:30 pm

Laura Tellado - AMAZING post. Mami cried reading it.

You can ALWAYS count on me for support, and I hope to be there for you and your family as Chance grows up to be an intelligent, HANDSOME, independent, compassionate boy. I love him so much. And you. <3

July 25, 2011 - 4:08 pm

Lora - There’s nothing better than getting together with others who “get it”.

One year ago.

“One day your life will flash before your eyes. Make sure its worth watching.” ~ Unknown A year ago today I learned we were expecting our little guy Chance.  After all I had been through the year prior and the many years prior to the kids being born, I admit it certainly felt like a […]

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July 17, 2011 - 9:21 pm

Rachel Alberty - I’m sure there are many more blessings to come from your little chance! I would love to talk to you In person sometime, I have been through a lot this year with my second pregnancy.

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