Author Archives: Amanda Kern

Matthew

I imagine some of you may have been missing my newborn photography. Life has been busy. I recently had the opportunity to photograph a sweet 8 day old little boy named Matthew. He was so precious and new. I have this feeling you all will enjoy a peak into some of his first moments along […]

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Double digits.

It’s been a busy few weeks since the last time I wrote on my blog. So I suppose a bit of an update is overdue. First, my baby boy is finally showing an interest in writing. I’ve tried several times this year but he’s always been disinterested in coloring or writing and if he’d join […]

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November 20, 2011 - 11:51 pm

Rachel Mayer - Happy or Sad your blogs make me cry! You amaze me Amanda.

December 5, 2011 - 10:23 am

Sylvia Huntley - I’m one of your students

Hi Amanda: You have a beautiful family! As I look through your pictures, I just realized I don’t take enough pictures of my son. I must start doing that now.

Thanks for sharing!

August 29, 2018 - 3:16 pm

IQRAWPQBNKMKANSEK - I have not checked in here for a while because I thought it was getting boring, but the last several posts are great quality so I guess I’ll add you back to my everyday bloglist. You deserve it friend :)

2011 Walk-N-Roll highlights

“Spina Bifida shouldn’t be something scary, sad, foreign, or feared as one would fear a death sentence. And yet every parent who is hears “I’m so sorry -there is something wrong – your baby has Spina Bifida” feels those things. Every pregnant mother who is left with the decision on whether or not to terminate […]

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October 30, 2011 - 7:45 am

Suzanne McKee - Amanda,
In your touching and beautiful photography and honest expression of feelings, you have done so much already for increasing the awareness and beauty of this very special spina bifida community. I have no words to tell you how much it means to me, one of Chance’s privileged nurses,to see the difference you, Chance, and your family have made in such a short time. We don’t always choose what life gives us but we can make it special. “The Big Man” doesn’t waste anything! God bless you and yours always. Suzanne

October 30, 2011 - 12:16 pm

Connie Bristow - Amanda–great job with the walk yesterday. I was proud to be a part of the inaugural Spina Bifida walk. It was fun, even if it was raining, maybe even more because it was raining. You should be proud of yourself. I wanted to let you know my friends that contributed: John, Denise Fisher, Jen & Brian Berry, Ana Alves, Dr. Law, Shandra Crummey. I am glad it was so sucessful. But of course the star was Chance. We all love him!

June 16, 2018 - 7:39 pm

Leah - This brings back memories of our first SB fundraising event. Laurel was about six months old and it was a hot day so we didn’t bother with coats. I spent the day helping SHINE our local SB charity raise money. It was a good day.

2011 Orlando Walk-N-Roll update

We’re just a few days away from Orlando’s 1st annual Walk-N-Roll for Spina Bifida event so I figured I’d take a moment to update you all who might be planning to join us at the event. The event is taking place at Blue Jacket Park in Orlando, Florida on Saturday October 29th, 2011. Registration begins […]

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November 8, 2011 - 6:13 pm

Ella Konopacki - Hi Amanda,

I keep looking at your blog every now and then because I keep wondering how you and your family are doing. Your little fighter has gotten sooo big. He is the most adorable little boy. When was his birthday again? I think I missed to say Happy Birthday, Chance. :)

I love your pictures and how involved you are with Spina Bifida. Does your day have enough hours? ;)

Take care,
Ella

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Reflection

“There is a strength in vulnerability and exposing your scars to the world.” ~unknown This time last year my life was still amidst quite a bit of uncertainty, fear, and filled with overwhelming moments as we had come so close to giving up on my baby boy. It seems like many more days in the […]

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