“She not only saw a light at the end of the tunnel, she became that light for others.” ~ kobi yamada If you mention “D-day” to most the thoughts of troops storming the beaches of Normandy might enter their minds. But if you ask most parents of a child with spina bifida they likely will […]
Monthly Archives: September 2012
such a strong and handsome fella <3
You’re right, D day means something entirely different to some of us. I can not only tell you the date, but all the details of the days Justin was diagnosed with Type one diabetes and then Epilepsy. I will never forget. Both broke my heart.
Chance has to have the sweetest face ever and I am so glad his story has been able to reach others. I’m sure you know how it feels to find someone who understands and those families are blessed that you are willing share your families journey with them.
I look forward to seeing what he can do next year… He is truly an amazing young man.
I just received results for my screening and it came back positive for NTD greater than 1 in 10 chance. I came across your blog and have read every post since I can’t seem to sleep tonight:/ I just want to say thank you from the bottom of my heart for your blog and you sharing every moment. I go to the maternal fetal medicine for a level 2 ultrasound. But I’m going to walk in the office so much more educated and optimistic. Thank you again.
Last week I got to meet with Jacqueline & Jermaine’s family to take their daughter Madison’s newborn photos. A little over three years ago I first met them as I took their son Nathaniel’s photos. I’ve done photos a couple times for their family so the moment I heard the news about Madison I was […]
by Amanda Kern
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If you’ve been following along with my photography on my blog you may recall photos I took this summer of Lindsey’s family just a few weeks before her baby girl arrived. Though I didn’t get to meet with them as soon as we’d have liked to for newborn photos, we got together recently to capture […]
by Amanda Kern
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“God sometimes takes us into troubled waters not to drown us but to cleanse us.” ~unknown As it’s getting a little closer to that time of the year where I am reminded of the first time I truly learned about spina bifida, when our baby boy was diagnosed, I’ve found myself spending a bit more […]
by Amanda Kern
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“The good you do today, people will often forget tomorrow; Do good anyway.” ~Mother Teresa I learned earlier this year that the folks leading the Central Florida Blogger Conference would be supporting the Spina Bifida Association of Central Florida in a “blogging for good” initiative they were going to do at this year’s conference. Throughout […]
by Amanda Kern
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Looking at this post reminds me of my previous roommate!
He constantly kept preaching about this. I’ll send this information to him.
Fairly certain he’ll have a good read. Thanks
for sharing!
Looking at this post reminds me of my previous roommate!
He constantly kept preaching about this. I’ll send this information to him.
Fairly certain he’ll have a good read. Thanks
for sharing!
Looking at this post reminds me of my previous roommate!
He constantly kept preaching about this. I’ll send this information to him.
Fairly certain he’ll have a good read. Thanks
for sharing!
by Amanda Kern
3 comments