Yearly Archives: 2011

More shunt surgeries & photos

“They say bad things happen for a reason.” ~Breakeven. This time a week ago I never would have imagined we would have spent most of the last week in the hospital with Chance. Nor would I have ever believed that he’d have gone through three surgeries in a matter of a few days. Last year […]

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August 3, 2011 - 11:26 am

Shanna Burgoyne - Miss Amanda,
I am boo hoo crying because yet again I am not closer to be with you when you need me the most! You are amazing and I love you more than I can ever write in words! You and Jason amaze with me with your strength! You are amazing parents and Chance, Hope, and Jaylen are the luckiest kids in the world! This is my favorite blog and the photos are amazing as always. Chance is beautiful and his eyes speak to my soul!

Love you,
Miss Shanna

August 3, 2011 - 12:49 pm

Elaine - I am very happy for you all that things went, and are, going well! Thank you so much for sharing this personal and difficult time with us! Your faith and strength in God, and each other, show in all you do and say; you are all a great inspiration to all of us! Good Luck and take care!

August 3, 2011 - 10:49 pm

Joni - Amanda, you are really a Super Mom in all ways, and you have the Super kids to prove it! Can’t leave out Super Dad either!
Thanks for your honest reflections, and for being who you are.

September 24, 2011 - 12:42 pm

Disadvantage » Blog Archive » Shunt pictures - [...] More shunt surgeries & photos ?» Amanda Kern Aug 3, 2011 … 'They say bad things happen for a reason.' ~Breakeven. This time a week ago I never would have … [...]

surgery number eight

“Even heroes have the right to bleed” ~Superman, Five for Fighting Eight. Eight surgeries for my five month old baby boy. It’s a surreal feeling…and I admit we’re all still in disbelief. Chance is in surgery at the moment to have his shunt revised again. We can’t keep up with the number of people calling, […]

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August 2, 2011 - 11:38 pm

Nicole Summers - So sorry to read about this latest revision. I hope the second catheter will help. My daughter has had 4 revisions so I know how very scary this all is.

Sending lots of prayers for a speedy recovery,

Nicole

surgery number seven

“Everything in life is luck.” ~Donald Trump Luck. Something that seems to always work against me & my family. As luck might have it…I find myself posting another update from the hospital as my baby boy has went through yet another surgery. Surgery number seven. Seven is thought to be a lucky number…for everyone except […]

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July 31, 2011 - 12:11 pm

Betsy - Amanda – just wanted you to know I’m praying for your little boy & you.

July 31, 2011 - 3:50 pm

Lora - I can only imagine how heartbreaking this has been for you. Chance is very lucky to have you as him mom and a family that loves him more than anything. Please know that we continue to pray for you guys.

July 31, 2011 - 4:07 pm

Randi Williams - Our Patricia has had only one shunt malfunction in her first 15 months, so I don’t know what you are going through, but my thoughts are with you. It sounds like you have a lot of people around you for support, but if you need to get in touch with another mom of a child with Spina Bifida, I am here.
Randi

July 31, 2011 - 4:37 pm

Lisa - Whatever you need, let us know.

August 1, 2011 - 9:36 pm

Elizabeth - What state are ya’ll from? I have SB and hydrocephales. My prayers are going up for you and your family. Stay strong God always has a plan! Jeremiah 29:11.

The last 48 hours

“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths.” ~Elisabeth Kubler-Ross What a whirlwind this week has been. Typically this week is one of the busier weeks of the year for me as we’ve approached final […]

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July 31, 2011 - 1:29 pm

Heather - your LO is soooo adorable!…you are truley a strong woman! my daughter has Sb herself she is now 2years old and im so lucky that she has only needed but one surgery after her birth! KEEP FAITH and stay strong! ps i love all ur pix they really grab the moments

surgery number six

“God places the heaviest burden on those who can carry its weight.” ~Reggie White I know it has come as a bit of shock to many of you to wake up this morning and learn that my baby boy has went through with his sixth surgery. It all happened quite fast, and I suppose it’s […]

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July 28, 2011 - 10:45 am

Kim - Praying he recovers quickly, and you can all go home and get some much needed rest. Those all nighters can really wear you out. Thanks for the update!

July 28, 2011 - 11:04 am

Ann O - You and your family are in my prayers!
How unfortunate to see a little baby go thru so many surgeries. I know it’s so hard on Mom and Dad.

July 28, 2011 - 2:15 pm

Angela - What a trooper…there is nothing Super Chance can’t overcome. Sending prayers for a speedy recovery.

July 28, 2011 - 2:29 pm

Melanie D. - You did good Mom – you caught it right away and got him the help he needed immediately! Keep your chin up – I know how tired you are and how the “rollercoaster” REALLY stinks…from a fellow SB Mom who has been there…

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