Passing time.

I know, I know…it’s been more than a day since I’ve posted an update about my little man on my blog and I know you all are anxious for an update. I’ve had quite a few people asking me how he’s doing. Well, we’re just passing time and this photo pretty much  sums up what Chance thinks about just sitting here in the hospital…silly guy would be bored to death if it weren’t for that pacifier that he loves to show off lately.

Oh…and he knows he’s funny when he does this little pacifier trick. Really, this kid could be a comedian…he cracks me up.

Seriously, just go ahead and laugh…that’s all he wants is to make you smile…so he can smile too.:)

We were told yesterday that the labwork came back from his CSF showing that his red blood count was high in the fluid that’s being drained from his head. We had hoped to go through surgery Monday, however, because of the results of this test we have to wait. If we went forward after getting those results it’s likely that the shunt would clog again and cause another malfunction. So we’ve got to wait a few more days. Surgery will likely happen on Wednesday or Thursday. Chance is getting bored…there’s really only so much we can do.

Sunday I got to take a bit of a break and headed over to Winnie Palmer to meet with others for the Spina Bifida Association of Central Florida’s board meeting. We chatted a lot about the planning for the upcoming walk-n-roll event and afterwards a few of the ladies headed over to visit Chance. I suppose I should thank spina bifida for doing one thing…it’d build a family I never knew I had. I’ve had more people affected by spina bifida visit Chance in the hospital than anyone else.

Chance enjoyed the company.

While at the meeting we received word that the Mayor of Orange County and the Governor of Florida have officially recognized October as being Spina Bifida Awareness month in the state of Florida. We all owe a great deal of credit to Nicole Gower for helping make that happen and for all the amazing work she’s doing to help push for the local chapter to be something so much more amazing to families in central Florida.

The days seem to be dragging since we learned surgery would be delayed. The days have begun to merge together. Chance is no longer on an IV. I’m quite thankful he has one less wire for me to worry about but it means we need to pump him full of more fluids given the amount of fluid being removed from his little body through the wire draining fluid from his head. He’s been drinking lots of pedialyte.

Around lunchtime Jaylen came to visit. He brought his favorite puppy dog.

Jaylen has missed his baby brother a lot. He is always excited to come visit and once he arrives home he lets Jason know he misses Chance. It made my day to see them together today. Chance was bored and tired of laying around so I sat him in his bumbo just before Jaylen arrived. Boy was he excited to see Jaylen! Jaylen has this new thing he started to do with Chance. If you’ve ever seen Finding Nemo you might recollect the scene from the movie where they say “fin. noggin. dude!” Jaylen does this to Chance and he ends up full of giggles.

I can’t wait to be home so they’ll have more time together…

Chance was a bit more fussy today. I’m convinced he’s just tired of being in this room laying around. As much as I try to move him around sometimes it just doesn’t help. We spent a while this afternoon just hanging out together. It’s a hassle to move all the wires and make sure the wire draining externally to a bag is set up correctly but we did what we  had to do and he couldn’t have been more happy to be in my arms. Today this little stinker learned to pull the wires off that track his vital signs. If we’re not careful he might get super sneaky and find a stealth way to escape…okay, that’s what I wished we could do.

Quite a few times today this was the baby boy I had to care for. The one who let me know many times today that he’s had enough of this hospital. Yes, Chance, you’ve expressed my sentiments quite well too. Just a few more days buddy and we should be home.

If all goes as planned we should be here just a few more days. The doctors have ordered him start a vitamin K shot to help with clotting so that when it comes time for the surgery he might do better and hopefully it’ll help prevent issues with the next shunt.

So for now we wait. And pray.

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October 4, 2011 - 2:57 am

Jessica Robinson - Amanda,
Chance and the whole family has constantly been on my mind. I am hoping and praying you both get to get back home to a normal routine soon, and most of all I pray that this next shunt will last 100 PLUS years! :) I guess Chance is trying to show his super powers again..lol..he is doing a wonderful job, but I do think it’s time for a break.

October 4, 2011 - 7:02 am

Shanna Burgoyne - I love and miss you! You are always in my prayers and even more so lately! You have more strength than anyone I have known (outside of my momma). I love all the pics of course! Stay strong!

Miss Shanna

March 20, 2025 - 5:07 pm

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Some recommend ordering a half measurement down, while others claim
these weightlifting clogs run true to measurement.
In my expertise, the latter proved true, however I perceive that matches can differ tremendously from one foot to the
other. I love the simple design, and I certainly can’t complain about the
truth that these footwear are solely $65. If you need a no-frills
shoe you’ll be able to put on from the health club to the street, you’ll find a way to’t go mistaken with
the Converse Chuck Taylors. This traditional timeless shoe has a
high prime design for added ankle support, a flat sole for even weight distribution and stability, and
endless colors to choose from.
This offers an intense grip during rope climbs and ensures that the
wearer has maximum traction on the coaching room ground or
pavement. The rubber tread on the outsole of the shoe also provides
excellent grip from all angles. The Nike Males’s Metcon 7 Training Shoe comes with Nike React foam, which supplies a cushioned base.
This permits for a light-weight and springy really feel when performing cardio and sprints.

When we put these on, we immediately liked their ultra-responsive cushioning.
We additionally actually like the dome-shaped piece within the heel, which relaxes while you run and compresses whilst you lift weights,
offering adaptable assist that adjusts to your workout.

When you want a fitness center sneaker that can double as a
street working shoe, we advocate Brooks’ Adrenaline GTS
23 Shoe.
When it comes to heel drop—or the difference in top between the heel and midfoot—it’s
really up to you, Dr. Gremillion says. A zero-drop (a.k.a.
flat) shoe enables you to push by way of your heels, serving
to you progress weights up with extra force, which
is useful for workouts like deadlifts. On the other hand,
an elevated heel increases your ankle’s vary of motion, which can help you maintain your posture and get deeper into
sure lifts, like back squats, Thompson explains. Weightlifting shoes are different from many running shoes, which frequently have a curved rocker sole.
These bottoms are designed for ahead motion, however they can throw
off your steadiness whereas lifting.
The canvas development may be very sturdy, too—these sneakers are immune to put on and the fabric would not lend to scuffs the way other shoes do.
We observed that they felt more snug over time as our toes obtained used
to them, they usually even helped enhance our kind throughout lifts.
We faucet experts and everyday gym-goers to test new weightlifting and fitness center sneakers annually as a part of SELF’s Sneaker Awards—that’s why earlier years’ winners pepper our listing.
And, as an ACE-certified personal trainer and SELF’s director of health and meals, Sgobba tries out
new models and writes shoe evaluations year-round as
a part of her job. She’s worn many of our prime picks extensively,
evaluating them for fit, really feel, and performance.

“Wearing a supportive sneaker helps keep the integrity of the midfoot posture and supporting ligaments in your toes, knees, and hips,”
Dr. Hatch says.
It offers more width than many CrossFit shoes and
strikes a stability of cushioning for versatility in workouts.
Whereas not designed for extended cardiovascular workouts, Chucks serve nicely for short bursts of exercise.

Beyond the gym, their timeless design transitions effortlessly
to informal wear, making them a staple for numerous
wardrobe styles. The Nike Metcon 9 continues to uphold the legacy of
its Metcon lineage, delivering top-tier efficiency for CrossFit lovers and fitness buffs alike.

They have a heel elevation of just 15 mm, so
they’re a good mannequin when you’re new to weightlifting normally
or simply new to elevated heels. Under Armour’s Unisex UA
SlipSpeed Coaching Shoes are well-ventilated and stored our
ft cool and comfy all through 15 lifting periods. We also appreciated
the excellent traction on these, as the shoes gripped the
gym flooring very well, which made us feel extra steady and assured whereas lifting.

The midsole is EVA but features a TPU heel counter for extra assist.
Coupled with an 8mm heel-to-toe drop, these are my favorite trainers for weightlifting.

The toe field on these shoes is wider than most, which is right for
deadlifts.
If you’re an skilled powerlifter or CrossFitter, the
Inov-8 Fastlift Power G 380 is calling your name. This is a surprisingly lightweight but strong-performing squat
shoe. Graphene is doubtless certainly one of the
hardest supplies to exist, 200 occasions stronger than metal.

It would additionally clarify why this shoe is the
costliest on the list. You’re paying for top-quality material that is meant to
be further durable.
Both the counter and base obtained a 3 out of 5 for rigidity,
making them firmer than the common coach which will get 2.8 and a
pair of.7, respectively. Because of the firmness that these shoe elements
deliver, we felt that our feet got the assist and lockdown that they needed.

This coach’s exceptional airflow and weightlessness ship an energizing carry.
Our scales verify a mere 9.7 oz (274g), whereas we awarded it a 5/5 breathability score in our
smoke test.

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